Working Together As One.....For All
   ABOUT US

LIFSSAC BOARD MEMBERS

MICHAEL BUFFA, Co-Chair

ALISON GIANGREGORIO, Co-Chair

GERI ATHENAS, Corresponding Secretary

MARY FASANO, Recording Secretary

CONRAD BERGMANN, Treasurer

CATHY AZIZ, Information Technology Officer

MARISSA BENNETT

KATHY CALLAHAN

JUDY GREENBERG

COLLEEN KUNKEL

TERRI MANZIONE

CRAIG MARCOTT

BOB POLICASTRO

ROY PROBEYAHN

JOANN RIPP

RALPH WARREN

   Who are the members of the Advisory Councils?

   Membership to the Council is open to any volunteers who have a family member with
   a developmental disability or to consumers. Family members are eligible even if their            relative with a developmental disability no longer lives at home or is deceased. Family          members who are service providers are also eligible for membership. Family Support            Services Advisory Council members are parents and family members just like you.              The Family Support Services Coordinator in your local area can give you information            on how you may participate in your local Family Support Services Advisory Council.            It is the goal of the Advisory Council to advocate on behalf of all families who have            family members with a developmental disability and to continually improve the quality          of services for individuals and families throughout New York State. Local Councils              welcome new members and strive for representation of all cultures, ages, levels of need        and geographic distribution.

   What is the role of the Advisory Council?

   The Council's role is to provide a strong voice for individuals and families on the local
   level, working with and through the DDRO to plan, develop and monitor Family Support
   Services in that area.

   What is the Advisory Council's goal?

   It is the goal of the Advisory Council to evaluate current Family Support Services
   programs to determine whether they meet the needs of families and individuals who are
   receiving the services, and to provide direct input regarding program viability, assessing
   whether or not each one should be renewed based on its merits and performance record.
   To achieve this goal, the Advisory Council members review Requests for Proposals
   (RFPs) submitted by agencies for new funding, as well as Requests for Renewals
   Proposals (RFRPs) submitted by agencies seeking to renew previously funded programs.
   The Community Council seeks to increase community outreach and to promote awareness
   of Family Support Services programs in their local areas.

    How do Advisory Councils evaluate community needs and Family Support
   Services
programs?


   Evaluation and review is accomplished in many ways; however, it is common practice for
   Councils to send surveys to families and conduct site visits to Family Support Services
   funded programs. Whenever possible, The Council assists the DDRO in reviewing each
   program annually before renewal, and meets with agencies regarding program review as
   appropriate.

   What process is used to choose proposals that will be funded?

   Councils recommend priorities for programs to DDRO directors. Priorities are derived by
   reviewing the Developmental Disabilities Profile 4 (DDP4) which is OPWDD's needs
   assessment form, and also gains input from family members, individuals served, providers,
   local government representatives, advocates and other concerned individuals. The Councils
   review all proposals submitted and each one is rated according to local priorities.

  
   OUR MISSION

   The Long Island Family Support Services Advisory Council:
  

   Provides the Long Island Developmental Disabilities Regional Office (LIDDRO) with a
   consumer and family oriented vision of family support services and family centered
   feedback on services

   Advises the LIDDRO on all family support policy matters as they relate to needs,
   resources, program design, and monitoring

   Assists the LIDDRO in long term policy issues related to families

   Provides a forum for the exchange of ideas and information on exemplary and innovative
   service delivery

   The Long Island Family Support Services Advisory Council Believes:

   Families are the greatest natural resource available to individuals and are the major
   providers of support, care, and training of individuals living at home

   Individuals with disabilities need enduring family relationships in a nurturing home

   Each family is unique, can define its own needs, and must be involved in the planning and
   evaluation of family supports

   Family support must address the total family, not just the individual with a disability

   Family support must be easily accessible, culturally sensitive, flexible, and individualized

   Family supports must be designed to promote independence and the inclusion in natural
   community settings of the individual with disabilities

   A coordinated, statewide system of core services and choices must be made available to all
   families

   Family Support Services may include:

   Respite – Day, Evening, Weekend, Overnight in or out of the family home
   Information, Referral and Outreach
   Family and Individual Counseling
   Family Member Training
   Recreation – Day, Evening, Summer/Day Camp
   Transportation
   Sibling Services
   Service Coordination
   Reimbursement for Purchase of Goods and Services
   Crisis Intervention
   Home Modification
   Advocacy
   Behavior Management
   Financial and Life Planning Assistance