LIFSSAC BOARD MEMBERS
MICHAEL BUFFA, Co-Chair
ALISON GIANGREGORIO, Co-Chair
GERI ATHENAS, Corresponding Secretary
MARY FASANO, Recording Secretary
CONRAD BERGMANN, Treasurer
CATHY AZIZ, Information Technology Officer
Who are the members of the Advisory Councils?
Membership to the Council is open to any volunteers who have a family member
a developmental disability or to consumers. Family members are eligible even if their relative with a developmental disability no longer lives at home or is deceased. Family members who are service providers are also eligible for membership. Family Support Services Advisory Council members are parents and family members just like you. The Family Support Services Coordinator in your local area can give you information on how you may participate in your local Family Support Services Advisory Council. It is the goal of the Advisory Council to advocate on behalf of all families who have family members with a developmental disability and to continually improve the quality of services for individuals and families throughout New York State. Local Councils welcome new members and strive for representation of all cultures, ages, levels of need and geographic distribution.
What is the role of the Advisory Council?
The Council's role is to provide a strong voice for individuals and families
on the local
level, working with and through the DDRO to plan, develop and monitor Family Support
Services in that area.
What is the Advisory Council's goal?
It is the goal of the Advisory Council to evaluate current Family Support
programs to determine whether they meet the needs of families and individuals who are
receiving the services, and to provide direct input regarding program viability, assessing
whether or not each one should be renewed based on its merits and performance record.
To achieve this goal, the Advisory Council members review Requests for Proposals
(RFPs) submitted by agencies for new funding, as well as Requests for Renewals
Proposals (RFRPs) submitted by agencies seeking to renew previously funded programs.
The Community Council seeks to increase community outreach and to promote awareness
of Family Support Services programs in their local areas.
Evaluation and review is accomplished in many ways; however, it is common
Councils to send surveys to families and conduct site visits to Family Support Services
funded programs. Whenever possible, The Council assists the DDRO in reviewing each
program annually before renewal, and meets with agencies regarding program review as
What process is used to choose proposals that will be funded?
Councils recommend priorities for programs to DDRO directors. Priorities are
reviewing the Developmental Disabilities Profile 4 (DDP4) which is OPWDD's needs
assessment form, and also gains input from family members, individuals served, providers,
local government representatives, advocates and other concerned individuals. The Councils
review all proposals submitted and each one is rated according to local priorities.
The Long Island Family Support Services Advisory Council:
Provides the Long Island Developmental Disabilities Regional
Office (LIDDRO) with a
consumer and family oriented vision of family support services and family centered
feedback on services
Advises the LIDDRO on all family support policy matters as
they relate to needs,
resources, program design, and monitoring
Assists the LIDDRO in long term policy issues related to families
Provides a forum for the exchange of ideas and information
on exemplary and innovative
The Long Island Family Support Services Advisory Council Believes:
Families are the greatest natural resource available to
individuals and are the major
providers of support, care, and training of individuals living at home
Individuals with disabilities need enduring family relationships in a nurturing home
Each family is unique, can define its own needs, and must be
involved in the planning and
evaluation of family supports
Family support must address the total family, not just the individual with a disability
Family support must be easily accessible, culturally sensitive, flexible, and individualized
Family supports must be designed to promote independence and
the inclusion in natural
community settings of the individual with disabilities
A coordinated, statewide system of core services and choices
must be made available to all
Family Support Services may include:
Respite – Day, Evening, Weekend, Overnight in or out of the
Information, Referral and Outreach
Family and Individual Counseling
Family Member Training
Recreation – Day, Evening, Summer/Day Camp
Reimbursement for Purchase of Goods and Services
Financial and Life Planning Assistance